CARING
FOR PEOPLE WITH DEMENTIA
'Circle of Care' is a programme developed
for care-giving relatives of dementia patients by the German Alzheimer
Association in collaboration with Janssen-Cilag, which aims to provide
in-depth information and relief
Dealing with the progression of Alzheimer's Disease and caring for
people through the three stages of the disease is often a daunting
and distressing task. This has principles in common with all forms
of Dementia. Often relatives feel isolated and alone and feel they
are left to their own devices, dealing with the 'unknown' and seeing
their beloved ones becoming more and more distant and estranged.
We hope our information will be of help to you and your loved ones
Showing support for
and acceptance of the person with his/her disease will help acceptance
of the disease for both of you. Respect the façade the patient
builds as an attempt at self-healing and don't trivialise the fears.
Give patients a sense of security & let them know you are not
going to abandon them, but never keep any promises you can't keep
(especially never say you will never move your relative to a home
as you might not be able to keep this promise!)
Don't bear the burden
on your own, share the responsibilities; the highs, lows & doubts
with family, friends & groups plus seek professional support.
One of the hardest things is to help carers help themselves.
Permitting personal 'Space' allows the carer time to reflect on
their personal situation, develope a life outside of Dementia, and
be better prepared to support their loved one - you must learn to
be selfish for their benefit
The key is to everything
is as simple as 'Quality of Care'. Your emotional attitude &
approach are extremely important - be interested, be happy, be yourself
and most of all - have some fun! It is catching and very rewarding
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